Thursday, December 17, 2015

Thursday, December 17, 2015...28th day in the hospital



Thursday, December 17, 2015...28th day in the hospital


BJ's white count is down now to less than 0.1. This is amazing, and exactly what we wanted to see happen with the chemotherapy he received from last Thursday through Tuesday. His magnesium and calcium levels are a little low. He is getting additional calcium and magnesium, and his doctors think things should balance back out in a few more days. The nerve pain in his feet was his biggest issue again today. It's truly getting unbearable. Morphine does not help that pain. He tries so hard not to complain. He even tells himself to stop. When I asked him why he said 'stop', he said he's tired of hearing himself whine. The nurse was able to get some lidocaine patches this afternoon to put on his feet. It seems to be helping some. Hopefully the increasing Neurontin doses will kick in soon.

This morning, a retired Navy SEAL called BJ from his hospital room in Stanford, California. He was just diagnosed with AML (Acute myeloid leukemia). He had seen BJ's story, and was moved by his strength. He wanted to talk to BJ, and just let him know that everything was going to be ok. Talking to each other was a benefit to both of them, and BJ was definitely smiling when they hung up. I even saw a sparkle in his eyes.

We want to thank everyone who has shared these facebook posts, sent BJ cards and post cards, prayer shawls and other gifts. Thank you for your support with his Go Fund Me page, and T-Shirt campaign as well. His high school (North Lincoln High) had an Orange Out day in support for BJ and childhood leukemia yesterday. His middle school's (North Lincoln Middle) spirit week honoring BJ is coming to an end tomorrow. His elementary school (Rock Springs Elementary) is backing his fight as well. We are just overwhelmed at all the support from churches, schools, businesses and individuals sharing in BJ's fight. Several people have shared that their whole family is praying for BJ. Little children are saying prayers for him every night. People across the world are praying for BJ's health and for him to kick leukemia's ass once and for all. We feel the power in those prayers. Just like BJ said in his video last night...the prayers are working. We just ask for you all to please continue to share and pray for him as he waits and prepares for the next step, which will be a bone marrow transplant. It will be several weeks before his counts recover enough for him to have another bone marrow biopsy. Doctors are expecting about 5 weeks before they come up enough to have the biopsy. We are looking at this 5 weeks as time for him to reclaim some muscle he's lost in the past month and get stronger before he goes into transplant. In the meantime, BJ has no functioning immune system. Keeping him well will be crucial.

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