Tuesday, September 13, 2016


4 years ago on this day, every plan I had for the future changed. We went into a fight and survive mode for the next 3 1/2 years. Living with a heightened awareness of the unseen evil lurking to harm my precious boy.

1 year ago on this day, I took BJ to Duke to get his blood drawn into more vials than I have ever seen sitting on a table tray. We hoped and prayed that he would get on the CAR-T clinical trial that had proved successful for some other kids. He got on the trial, but it wasn't successful.

6 months ago on this day, my son, and half of my heart had been in the ground for 2 days.

I am constantly aware of the incomplete feeling, the feeling that I have lost something very important, the subconscious searching, the aching feeling when I see my daughter missing her big brother and missing what will never be a part of our future here on Earth. I am constantly aware of children's cancer. It's time to do something about it.

No comments:

Post a Comment